Twins with rare disease in Soc Trang, parents are accused of profiteering, what now?

The twins in Soc Trang have angelic beauty: white skin, blue eyes and silky hair, causing a stir on social networks for a while. Currently, many people can't help but be curious about what the lives of the two children are like at present?

The angel twins with albinism in Soc Trang are no longer strangers to public opinion. Some people even "meticulously" follow the lives of Tam Sister - Tam Em through the YouTube channel created by Mr. May Dang - the father of the two children. Loyal viewers hope the children's parents can earn more income and improve their current difficult life.

Currently, the twins' YouTube channel has 184,000 followers with 366 videos and hundreds of thousands of views. Every few days Mr. May and Ms. Rong will post a 5 to 14 minute video recording scenes of the daily life as well as the growth of Tam Sister - Tam Em.

As for the angel twins, both of them continuously appear on YouTube channels with videos about daily life alongside their parents, older brother or grandparents. In particular, the two were able to live with their brother, not separated like people from the countryside - people from Binh Duong like before.

Usually the content of the video revolves around the topic of Sister Tam - Sister Tam, what to eat and drink, delicious dishes cooked by the Dragon Mother; Planting trees in the mini garden with May's father; experience wading in the fields with Long and his siblings near home; go to fly a kite...

Regarding life, after becoming "famous" on all social networking platforms, the twins as well as their family have had many changes. Both of them are often taken by their parents to tourist lands and destinations in the West to explore. Many people believe that when the family's economy is stable, Mr. May and Ms. Rong will no longer have the pressure of being a worker and working overtime. It was a great joy for this family of 5 members.

Recently, Mr. May also shared the family's new joy. They are about to start building a spacious house in their hometown. Many people sent their wishes to the family, anxiously waiting for the new house to be completed.

The twins' mother also confessed that a while ago, they were quite stressed and did not want to record videos anymore because of mixed comments, saying they were taking advantage of their children for personal gain. But in reality, the family only films scenes of their child's daily activities, playing, going to school, eating and visiting grandparents to save the beautiful moments and memories of their childhood, without forcing them to do anything. other.

Mr. May and Ms. Rong and his wife have 3 children: 1 boy and 2 girls. All three have albinism - a disease caused by a genetic congenital disorder when one parent has a homozygous recessive gene and combines to give birth to such a child.

Ms. Rong once confided: "I spent several years learning about this disease and learned that, for people with the disease, a genetic defect causes the tyrosinase enzyme to not function, thereby causing skin and hair problems. , their fur loses pigment. Therefore, they are often afraid of strong sunlight and their eyesight weakens. Now when they go outside without sunglasses, they either don't like it or they keep squinting their eyes."

That day her eldest son was born, Ms. Rong collapsed and collapsed, seemingly unable to get up. Especially when she witnessed her child's eyes being afraid of light, she became even more desperate. She is afraid that one day when her child grows up, his eyes will not be able to see everything clearly, and he will not be able to see his father or mother. That's why she doesn't dare to give birth again, for fear of genetic inheritance.

" For nearly 10 years, my husband and I did not dare to have another child even though we really liked children. Four years ago, family and friends advised us to have a second child. They encouraged our first child to be albino, probably The second child got sick again, so we decided to have another child so that the family could have more children's voices and laughter.

When the doctor diagnosed a twin pregnancy, my husband and I were very happy, looking forward to their birth every day. But when I was on the operating table, seeing their appearance made me worried, unable to speak. Even the doctor was surprised," Ms. Rong said.

Cặp song sinh thiên thần ở Sóc Trăng: Gia đình từ ở trọ đến xây được nhà riêng Nguyễn Kim13:39:25 06/09/2024Cách đây 2 năm, câu chuyện của cặp song sinhthiên thần Thiên Kim (nickname Tâm Chị) và Mỹ Kim (nickname Tâm Em), 5 tuổi quê ở Sóc Trăng đã gây xôn xao mạng xã hội, được nhiều người chú ý.