She caused a fever because she was as beautiful as an angel, but suffered from a strange disease that everyone heard

Causing social media fever in a split second thanks to her doll-like face, but this little girl has an extremely rare disease in the world. Hearing this, everyone mourns my fate.

Recently, a clip recording the moment she returned to her hometown to celebrate Tet with her family, quickly attracted attention on social media platforms because of her beautiful angel-like appearance.

Accordingly, the little girl possesses large round eyes, red lips like lipstick, black hair swaying, smooth white skin and lovely pregnant face. The beauty like stepping in a fairy tale has made many people admire. Even wishing to have such a daughter.

However, the heavens often do not let anyone fulfill everything when giving you the beauty of the city, nor forget to send with it a rare disease at the rate of 1/1,000,000.

This little girl, popularly known as Lam Ni Ni, is 7 years old. Nini's mother was Xia Kha. Genetic testing reports revealed that she had a neurodegenerative disease. It took the little angel and her family almost 3 years to get this result.

"Before Nini was 6 months old, she made eye contact with us. We teased him with toys and he laughed. But 6 months later, he not only looked at us less but also made fewer voices, his body was soft, he couldn't lift his head and couldn't reach out to hold objects. He is completely different from other 6-month-old babies," Xia Kha said.

The diagnosis given by local doctors is developmental delay, so keep giving fluids, injections, acupuncture, physiotherapy, rehabilitation massage... "The therapeutic effect of the first course or two is still very clear. Nini can lift her head, she can reach for things," the mother thought her baby was getting healthier.

Unexpectedly, half a year later, Nini showed signs of retardation during the mental evaluation. In addition, she has another problem: Not reacting when called names and avoiding the eyes of the other person.

Because of this, the family decided to take Ni Ni to Shanghai for medical treatment, at which point doctors suspected she had severe autism. In addition to previous treatments, they applied additional autism-specific treatments to her.

Ni Ni was treated for developmental delay and autism at the same time until she was almost 4 years old. One day, private messages on social media made Xia Ke question her daughter's illness again.

"A genetics specialist from the Mother and Baby Hospital in Hunan contacted me saying that his condition was detected very early, but progressed obviously very slowly, not as simple as developmental delays and autism."

The young mother said they took blood samples from the couple and sent them to the hospital, from where they discovered neurodegenerative diseases are a rare group of neurogenetic diseases caused by genetic mutations.

Since then, Xia Ke and her husband have started doing rehabilitation training with Ni Ni. Although she still can't speak, can't take care of herself, and has the IQ of a child over 1 year old, Xia Ke is only more concerned about her daughter's day-to-day progress.

After hearing Ni Ni's story, some netizens left comments: "Grandparents and parents will leave then who will take care of you"; "May my family protect me 24 hours a day, now anything can happen let alone a child"; "Societies like this without civil capacity are easily exploited by bad actors"; "To be honest, people I've heard of and seen most of the people who are naturally handsome don't stay with their parents for long,...

Mẹ kế giàu có gặp nạn hậu An Tây bị bắt, chủ nợ của con chồng "dí" tận "nhà"? Keng16:14:45 15/11/2024Sau khi An Tây bị bắt, mọi sự chú ý đổ dồn vào gia đình của nữ người mẫu. Trong đó, mối quan hệ giữa mẹ kế và An Tây được nhiều người quan tâm. Mới đây, nữ doanh nhân Phượng Hồng Kông bất ngờ gặp biến căng.