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Celine Dion is one of the greatest voices in the world. However, over the past time, she had to stop singing because of the rare disease "stiff person syndrome". The diva's current health situation worries the public.
She hasn't held a concert for more than two years since becoming ill and doesn't know when she will be able to reappear to the audience. In a recent interview, Celine Dion revealed that it is very difficult to sing with this disease and even the singer has broken her ribs due to contractions. "It's like someone is trying to push your larynx and throat in one direction," the singer shared.
Dion's voice has been greatly limited since contracting the disease. She explained: "Even if I'm saying this, I still can't go high or down." Celine Dion was diagnosed with this rare disease in December 2022. It is a rare neurological disorder that causes muscle stiffness. Celine Dion said that contractions can occur in the abdomen, spine and ribs.
"It feels like if I point to my toe, it's going to be stiff in that position. Or if I cook, my fingers and hands will stay in place when the seizures start," she sadly confided.
Celine Dion will tell all about her battle with her illness in Amazon's new MGM documentary "I Am: Celine Dion," which will premiere in June this year. Celine Dion said in a statement: "The last few years have been challenging for me, the journey from knowing my condition to learning how to live with it and manage it, but never letting it define who I am. When I hadn't been able to return to perform, I realized how much I missed the spotlight and my fans. During my break, I decided I wanted to document this part of my life to help others with this disease."
She added that she hopes the film will "raise awareness of this little-known disease". Through this documentary, fans will have a deeper insight into the difficulties that Dion is facing and how she is trying to overcome them. Hard person syndrome not only affects the voice but also has a strong impact on the daily life of this talented female singer.
According to Dr. Pavan Tankha, Medical Director of Pain Recovery at the Cleveland Clinic, the syndrome causes a gradual hardening of the body, creating severe contractions. It was first defined in 1920, at that time it was called "stiff man syndrome".
Dr. Scott Newsome, director of the SPS Syndrome Center at Johns Hopkins Medicine, said this is a difficult form of the disease to diagnose. The medical community is not clear about the cause of this condition, but SPS is related to the immune system.
The syndrome itself is not life-threatening, but can affect the patient's quality of life. Like many types of chronic diseases, related complications can lead to reduced life expectancy.
Dr. Richard Nowak, assistant professor of neurology at Yale School of Medicine, said the disease affects anyone, at any age. However, the most common subjects are middle-aged people, between the ages of 30 and 60, who experience high levels of stress. Like many other immune conditions, the disease is more common in women than in men.
There is currently no cure for SPS Syndrome, so doctors focus on pain management, usually medication and therapy.
Stiffness and spasms can be treated with muscle relaxants and botox injections. More severe symptoms can be resolved with immunotherapy and immunosuppressive drugs.
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